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ROS1

Proto-oncogene tyrosine-protein kinase ROS is an enzyme that in humans is encoded by the gene. It is a (RTK) of the family, consisting of 2,347 amino acids and featuring an extracellular ligand-binding domain, a single transmembrane segment, and a cytoplasmic domain. ROS1 plays a role in epithelial cell and activation of downstream signaling pathways that regulate , survival, and organ development, particularly upon binding ligands such as NELL2. In normal physiology, it is expressed in various tissues including the , but its precise physiological functions remain under investigation. Pathologically, ROS1 is significant in oncology due to gene fusions or rearrangements that occur in approximately 1–2% of non-small cell lung cancers (NSCLC), often in younger, never-smoking patients with adenocarcinoma histology. These fusions, such as CD74-ROS1 or EZR-ROS1, result in constitutively active kinases driving tumorigenesis. ROS1 rearrangements are also reported in other cancers including colorectal, gastric, and ovarian carcinomas, though less frequently. Targeted therapies, including tyrosine kinase inhibitors like crizotinib (FDA-approved in 2016 for ROS1-positive metastatic NSCLC), entrectinib, and repotrectinib, have shown efficacy in treating these fusion-positive tumors. As of 2025, ongoing clinical trials and initiatives like The ROS1ders are advancing research and patient advocacy for ROS1-driven cancers.

Molecular Biology

Gene Characteristics

The ROS1 , with official symbol ROS1 and Gene ID 6098 (updated September 9, 2025), is located on the long arm of human at cytogenetic band 6q22.1, spanning approximately 139 kb from genomic coordinates 117,287,353 to 117,425,942 on reference assembly GRCh38.p14. It encodes the ROS proto-oncogene 1, a belonging to the family. The consists of 43 exons in its primary transcript (ENST00000368508.7), though can produce variants with up to 46 exons. Expression of ROS1 is primarily restricted during to epithelial tissues, where it plays a role in morphogenic processes such as in organs like the , coinciding with key developmental events. In , NELL2 was identified as the endogenous for ROS1, which activates intracellular signaling to promote epididymal epithelial . In adult tissues, basal RNA expression is low and tissue-specific, with the highest levels observed in the (RPKM 10.3) and also notable in testis and , but minimal elsewhere. However, ROS1 is upregulated in various tumor lines, reflecting its proto-oncogenic potential. ROS1, with NELL2 as its endogenous ligand, exhibits strong evolutionary conservation across species, from to and mammals, underscoring its fundamental role in cellular signaling. Its Drosophila homolog, sevenless (Sev), is a well-characterized essential for photoreceptor development in the compound eye. The encoded protein is a type I integral membrane receptor.

Protein Structure

The ROS1 protein is a 2,347-amino-acid polypeptide encoded by a gene located on chromosome 6q22.1. It functions as a type I transmembrane receptor tyrosine kinase, comprising an N-terminal extracellular region spanning residues 1–1,859, a single transmembrane helix at residues 1,860–1,882, and an intracellular C-terminal region from residues 1,883–2,347. The extracellular domain includes multiple fibronectin type III (FN3) domains, such as those at residues 99–177 and 195–272, which contribute to structural integrity and potential interactions. This region also contains predicted disulfide bonds and N-linked glycosylation sites (e.g., at residues in FN3 motifs), which stabilize the protein fold and facilitate proper localization. The intracellular tyrosine kinase domain spans residues 1,945–2,222 and encompasses key catalytic elements, including the ATP-binding site with the conserved GXGXXG motif (P-loop) at residues 1,952–1,957. The activation loop within this domain, approximately residues 2,110–2,145, features tyrosine residues Y2,110, Y2,114, and Y2,115 that serve as sites for autophosphorylation, enabling kinase activation. Beyond the kinase domain, the C-terminal tail (residues 2,223–2,347) includes additional regulatory tyrosines, such as Y2,274 and Y2,334, which undergo autophosphorylation to modulate signaling.

Physiological Function

Normal Roles

ROS1, functioning as a (RTK), displays dynamic expression patterns that underscore its involvement in developmental processes. During fetal development, ROS1 exhibits high levels of expression in epithelial tissues of organs undergoing , such as the , , and intestine, where it aligns temporally with critical differentiation and branching events. In contrast, adult tissues show markedly lower expression, confined primarily to niches like the testis (particularly the ) and select neural structures, including the and peripheral neural tissue. In kidney development, ROS1 is expressed in the ureteric bud, suggesting a potential involvement in inductive interactions between the ureteric bud and metanephric . Its transient expression in the developing lung coincides with epithelial differentiation and morphogenetic events during embryogenesis. These expression patterns highlight ROS1's potential RTK-mediated regulation of cellular processes essential for , though its precise mechanisms in these contexts rely on unidentified ligands. Studies in animal models further elucidate ROS1's physiological functions, particularly in reproductive and neural systems. Despite expression in developing and , ROS1 mice show no histological abnormalities in these organs, suggesting redundant mechanisms or non-essential roles. ROS1 mice exhibit male sterility due to disrupted epithelial in the epididymis initial segment, leading to production of immotile spermatozoa with flagellar defects, indicating ROS1's necessity for and post-testicular sperm maturation. Additionally, expression in neural tissues suggests potential involvement in neuronal , as inferred from developmental patterns and the absence of overt neurological phenotypes in knockouts, pointing to compensatory mechanisms. Overall, ROS1 supports non-pathological , survival, and migration in these contexts, maintaining tissue , though its ligand-dependent activation in adult humans—recently linked to the endogenous ligand neural epidermal growth factor-like ligand 2 (NELL2)—remains under investigation in non-reproductive tissues.

Signaling Mechanisms

ROS1 activation is primarily ligand-dependent, with neural epidermal growth factor-like 2 (NELL2) identified as an endogenous that binds the extracellular domain, promoting receptor dimerization and subsequent autophosphorylation of intracellular residues, such as Y2274 and Y2334. This autophosphorylation event stabilizes the active conformation of the kinase domain, enabling transphosphorylation of additional sites including Y2114 and Y2115, which serve as docking platforms for downstream signaling adaptors. Upon activation, ROS1 phosphorylates substrates that initiate multiple downstream pathways critical for cellular responses. The PI3K/AKT pathway is engaged through recruitment of p85, promoting cell survival and growth; the MAPK/ERK cascade is activated via GRB2/SOS/RAS coupling, driving proliferation; and STAT3 phosphorylation occurs directly or indirectly, influencing differentiation and gene expression. Kinase activity of ROS1 is characterized by in vitro assays demonstrating sensitivity to ATP-competitive inhibitors, such as with an of approximately 42 , which bind the conserved ATP-binding in the kinase domain. Structurally, involves a conformational shift in the activation loop from an inactive, disordered state to an ordered, extended configuration that aligns catalytic residues and facilitates substrate access. Signaling is tightly regulated by mechanisms, including by protein tyrosine phosphatases (PTPs) such as SHP-1 and SHP-2, which bind autophosphorylation sites to attenuate kinase activity. Additionally, ubiquitination targets activated ROS1 for proteasomal degradation, mediated by ligases like the Cbl family, preventing sustained signaling.

Pathological Roles

Involvement in Cancer

ROS1 functions as a proto-oncogene, encoding a whose aberrant activation drives oncogenesis by promoting uncontrolled , invasion, and through hyperactive downstream signaling pathways such as PI3K/AKT, MAPK/ERK, and STAT3. In normal physiology, ROS1 signaling is tightly regulated, but in cancer, dysregulation hijacks these pathways to confer malignant properties, including enhanced survival and migratory capabilities independent of physiological ligands. Alterations in ROS1 are detected in approximately 1-2% of non-small cell lung cancer (NSCLC) cases, predominantly adenocarcinomas, and occur at lower frequencies in other malignancies including , ovarian , (such as and ), , and inflammatory myofibroblastic tumors. These changes often involve chromosomal rearrangements, such as the FIG-ROS1 fusion originally identified in , which exemplify how ROS1 dysregulation contributes to tumorigenesis across diverse tissue types. Beyond fusions, non-fusion mechanisms of ROS1 activation include , activating point mutations, and overexpression, all of which can lead to ligand-independent dimerization and constitutive activity. For instance, amplification has been implicated in progression, while overexpression correlates with invasive phenotypes in cancers like metastatic oral , potentially through enhanced autophosphorylation and signaling without external stimuli. ROS1 alterations are associated with aggressive disease characteristics, such as poorer disease-free survival in certain cohorts, yet they confer a favorable prognostic outlook in terms of response to targeted interventions compared to wild-type tumors, with studies showing prolonged overall survival in ROS1-positive NSCLC patients (e.g., median 69.8 months versus 13.7 months in negatives in a cohort treated with crizotinib). This duality underscores ROS1's role as a driver of malignancy that is therapeutically exploitable, highlighting the need for molecular profiling to identify actionable alterations.

Fusion Variants and Prevalence

ROS1 fusion genes arise primarily through genomic rearrangements involving the ROS1 domain on 6q22, resulting in chimeric proteins with constitutive activity that drives oncogenesis. These fusions are most prevalent in non-small lung cancer (NSCLC), occurring in approximately 1-2% of cases overall, with frequencies up to 2.6% reported in some cohorts. In NSCLC, ROS1 fusions are detected almost exclusively in the subtype, with a of about 2.5-2.8% in adenocarcinomas compared to less than 1% in squamous cell carcinomas. The most common ROS1 fusion variants in NSCLC involve a limited set of 5' fusion partners, with over 50 recurrent and rare types identified across studies as of 2025. These fusions typically result from intrachromosomal deletions or inversions within 6q22, preserving the entire ROS1 while replacing the transmembrane and extracellular regions with dimerization motifs from the partner gene, leading to ligand-independent activation. The predominant variants include CD74-ROS1 (38-54% of ROS1-positive cases), EZR-ROS1 (13-24%), SDC4-ROS1 (9-13%), and SLC34A2-ROS1 (5-10%), with less frequent partners such as GOPC (FIG)-ROS1 (around 3-5%).
Fusion VariantApproximate Frequency in ROS1+ NSCLCPartner Gene Location
CD74-ROS138-54% 5p14.1
EZR-ROS113-24% 6q25.1
SDC4-ROS19-13% 20q11.21
SLC34A2-ROS15-10% 4q21.1
GOPC-ROS13-5% 6q21
Demographic factors influence ROS1 fusion prevalence in NSCLC, with higher rates observed in East Asian populations (2-3%), never-smokers (enriched up to 70-80% of cases), and younger patients (median age around 50 years). In contrast, ROS1 fusions are rare in other solid tumors, occurring in less than 1% of cases, such as 0.04% in and approximately 0.4% in gastric cancer.

Clinical Management

Diagnostic Approaches

Diagnostic approaches for identifying ROS1 alterations in non-small cell lung cancer (NSCLC) primarily involve molecular testing to detect gene rearrangements, fusions, and , as these drive decisions. The most common methods include (IHC) using anti-ROS1 antibodies to screen for protein overexpression, (FISH) with break-apart probes to confirm chromosomal rearrangements, and next-generation sequencing (NGS) for comprehensive detection of fusion partners and point . IHC serves as an initial, rapid screening tool due to its accessibility and lower cost, while FISH remains the historical gold standard for validating rearrangements. NGS, encompassing both DNA and RNA-based panels, provides detailed variant information, including rare resistance like G2032R. According to the (NCCN) Guidelines Version 5.2025, ROS1 testing is recommended for all patients with advanced or metastatic NSCLC, particularly those with histology or never-smoking history, as reflex testing in these subgroups enhances detection efficiency given the 1-2% prevalence of ROS1 alterations in NSCLC. The guidelines endorse a multimodal approach, prioritizing broad molecular profiling via NGS when sufficient tissue is available, with IHC or as complementary tests for confirmation. Sensitivity and specificity metrics underscore the reliability of these methods: demonstrates approximately 95% sensitivity for detecting ROS1 fusions, while IHC achieves 100% sensitivity and 92-99% specificity in multiple validation studies against . NGS excels in identifying non-canonical fusions and mutations, though it requires higher-quality for optimal fusion detection. Challenges in ROS1 diagnostics include limited tissue availability from small biopsies, which can restrict comprehensive testing, and variable turnaround times—typically 2-3 days for IHC, 3-7 days for , and 7-14 days for NGS—potentially delaying treatment. Pre-analytical factors, such as formalin-fixed paraffin-embedded sample quality, also impact accuracy. Emerging liquid biopsy techniques, using (ctDNA) to detect ROS1 fusions via NGS, offer a non-invasive alternative for initial screening or monitoring resistance in advanced disease, though current sensitivity remains lower (around 70-80%) compared to tissue-based methods due to tumor shedding variability. Ongoing refinements in liquid biopsy aim to address these limitations for broader clinical adoption.

Targeted Therapies

Targeted therapies for ROS1 fusion-positive non-small cell lung cancer (NSCLC) primarily consist of inhibitors (TKIs) that selectively block the aberrant ROS1 signaling. , a first-generation TKI, received FDA approval in 2016 for advanced ROS1-positive NSCLC based on the phase I PROFILE 1001 trial, which demonstrated an objective response rate (ORR) of 72% and median (PFS) of 19.2 months among 50 patients. , a next-generation CNS-penetrant TKI, was approved by the FDA in 2019 for ROS1-positive NSCLC, showing an ORR of 70% (95% CI, 61-78) and median PFS of 19.3 months (95% CI, 13.1-36.8) in an integrated analysis of 114 patients across phase I/II trials, with particular efficacy in those with (CNS) metastases (intracranial ORR 55%). Repotrectinib, a macrocyclic TKI designed to overcome resistance mutations including G2032R, gained FDA approval in November 2023 as a line-agnostic therapy for locally advanced or metastatic ROS1-positive NSCLC, with the phase I/II TRIDENT-1 trial reporting an ORR of 79% (95% CI, 68-88) and median PFS not reached in 71 TKI-naïve patients, and an ORR of 38% (95% CI, 22-55) and median PFS of 9.9 months in 34 pretreated patients. Emerging therapies aim to address limitations in CNS penetration and resistance. Taletrectinib, a CNS-active next-generation ROS1 TKI, received FDA approval on June 11, 2025, for advanced ROS1-positive NSCLC following of its new drug application; the TRUST-I and TRUST-II phase II trials reported an ORR of 89% in 90 TKI-naïve patients, with robust intracranial responses (ORR 73% in those with measurable CNS lesions). Zidesamtinib (NVL-520), another macrocyclic TKI targeting solvent-front mutations like G2032R, demonstrated promising results in the phase I/II ARROS-1 trial reported in 2025, achieving an ORR of 44% (including 1% complete responses) among 73 pretreated patients with advanced ROS1-positive NSCLC, with durable responses (12-month duration of response rate 78%) observed in those with G2032R mutations (ORR 54%) and CNS metastases (intracranial ORR 52%). As of November 2025, zidesamtinib remains investigational, with additional patient-reported outcomes from ARROS-1 presented at the 2025 IASLC-ASCO North America Conference on , demonstrating favorable tolerability in pretreated patients. Resistance to ROS1 TKIs arises through secondary kinase domain or bypass activation pathways, necessitating sequential therapy. The most prevalent on-target resistance is G2032R (solvent-front, occurring in 33-41% of post- cases), followed by L2026M (, in ~7-10%), both impairing binding; these are detected via next-generation sequencing of tumor or plasma samples. Off-target resistance includes MET amplification (in 10-20% of cases) and pathway activation, promoting alternative signaling. The 2025 NCCN guidelines recommend initial therapy with preferred next-generation TKIs (repotrectinib or taletrectinib) or for TKI-naïve patients; for progression with G2032R , repotrectinib (which retains activity against G2032R) is recommended, with consideration of clinical trials for other mechanisms, and biopsy-guided switching to avoid ineffective agents like post-. Common adverse events require vigilant monitoring to ensure treatment tolerability. Crizotinib is associated with hepatotoxicity (grade 3-4 elevations in transaminases in 5-6% of patients), mandating baseline and monthly liver function tests with dose interruption if levels exceed three times the upper limit of normal. Entrectinib frequently causes vision changes such as blurred vision or photopsia (in up to 20% of cases), alongside dysgeusia and weight gain; protocols include baseline ophthalmologic evaluation and periodic monitoring, with discontinuation if severe. Repotrectinib and emerging agents like taletrectinib and zidesamtinib exhibit favorable profiles with lower rates of severe hepatotoxicity (<5%) but similar CNS-related effects, emphasizing multidisciplinary management per updated 2025 guidelines.

Research Developments

Discovery History

The ROS1 proto-oncogene was first identified in the early 1980s as the v-ros transforming sequence within the UR2 avian sarcoma virus, a retrovirus isolated from a chicken tumor, where it encodes a tyrosine kinase responsible for cellular transformation. The human cellular homolog, designated c-ros-1, was cloned in 1986 from a genomic library using a v-ros probe, revealing a gene spanning approximately 26 kilobases with 10 exons that encodes a transmembrane protein with tyrosine kinase activity, structurally similar to the insulin receptor family. The oncogenic potential of ROS1 rearrangements in human cancer remained unexplored until 2007, when a global phosphoproteomic survey of tyrosine kinase signaling in 41 non-small cell lung cancer (NSCLC) cell lines and 150 primary tumors identified aberrant ROS1 activation due to fusions, including and the novel , marking the first report of ROS1 fusions as drivers in NSCLC. This discovery highlighted ROS1 as an actionable kinase target, with fusions leading to ligand-independent dimerization and constitutive activation. Subsequent studies in the early 2010s confirmed ROS1 fusions as recurrent drivers in approximately 1-2% of NSCLC cases, particularly lung adenocarcinomas, through large-scale genomic analyses; for instance, The Cancer Genome Atlas (TCGA) profiling of 230 lung adenocarcinomas detected ROS1 fusions in 1.7% of samples, while COSMIC database integrations corroborated this prevalence across broader cohorts. In 2012, screening of 1,073 NSCLC tumors via fluorescence in situ hybridization identified ROS1 rearrangements in 1.7% of cases, defining a distinct molecular subset enriched in younger, never-smoking females with adenocarcinoma histology. These findings prompted rapid clinical translation, culminating in the U.S. FDA granting breakthrough therapy designation to crizotinib in 2015 for ROS1-positive metastatic NSCLC, based on phase I trial data demonstrating high response rates. Preclinical validation of ROS1's oncogenic role came from early transgenic mouse models; in 2013, lung-specific expression of the EZR-ROS1 fusion in alveolar epithelial cells induced bilateral lung adenocarcinomas with high penetrance, confirming the fusion's driver function through constitutive kinase activation and histopathological similarities to human disease.

Ongoing Studies and Trials

Recent clinical trial data presented at the 2025 World Conference on Lung Cancer (WCLC) highlighted the efficacy of zidesamtinib (NVL-520), a next-generation ROS1 tyrosine kinase inhibitor (TKI), in patients with pretreated ROS1-positive non-small cell lung cancer (NSCLC). In the phase 1/2 ARROS-1 trial, zidesamtinib achieved an overall response rate (ORR) of 44% among 51 patients who had received prior ROS1 TKI therapy, with durable responses observed, including a median duration of response not yet reached at 12 months. Notably, the drug demonstrated activity against challenging subgroups, such as those with central nervous system (CNS) metastases (intracranial ORR of 52%) and the G2032R solvent-front resistance mutation (ORR of 54%). Updated results from the TRUST clinical trial program for taletrectinib, another CNS-penetrant ROS1 TKI, underscored its sustained benefit in ROS1-positive NSCLC. In TKI-naïve patients from TRUST-I and TRUST-II (n=108), the ORR reached 85%, with a median progression-free survival (PFS) of 25.7 months and robust intracranial responses in 74% of those with measurable brain metastases. For pretreated patients (n=60), the ORR was 62%, demonstrating prolonged PFS compared to historical standards. The ongoing phase 3 TRUST-IV trial, initiated in September 2025, is evaluating taletrectinib as adjuvant therapy in early-stage ROS1-positive NSCLC to further extend these outcomes. Research into ROS1 resistance mechanisms has advanced with next-generation TKIs designed to overcome solvent-front mutations like G2032R, which occur in up to 41% of cases post-crizotinib. Repotrectinib, a macrocyclic TKI, showed preclinical and clinical potency against these mutations in the phase 1/2 TRIDENT-1 trial, achieving an ORR of 79% in TKI-naïve patients and 38% in pretreated ones, including those with solvent-front alterations. Similarly, taletrectinib and zidesamtinib exhibit 11- to 20-fold selectivity and activity against G2032R, addressing limitations of earlier agents.02413-9/fulltext) Combination strategies are under investigation to enhance TKI efficacy and combat resistance, particularly integrating ROS1 inhibitors with PD-1 inhibitors. Preliminary data from basket trials suggest that immune checkpoint inhibition may augment responses in ROS1-positive tumors, though response rates to PD-1 monotherapy remain modest (around 20-30%) due to low tumor mutation burden. Ongoing phase 2 studies, such as those combining ROS1 TKIs with anti-PD-1 agents like pembrolizumab, aim to improve outcomes in advanced NSCLC by targeting both oncogenic signaling and the immunosuppressive microenvironment. Exploration of ROS1 alterations beyond NSCLC includes trials in other solid tumors. In glioblastoma, GOPC-ROS1 fusions have been identified in pediatric and adult cases, with entrectinib yielding prolonged responses in recurrent disease as part of basket studies like NCT02568267, which enrolls patients with ROS1-positive solid tumors including gliomas. For sarcomas, phase 2 basket trials such as those for repotrectinib and entrectinib are assessing activity in ROS1-rearranged soft tissue sarcomas, reporting preliminary intracranial efficacy. Biomarker detection is expanding through AI-driven next-generation sequencing (NGS), which predicts ROS1 fusions from H&E slides with high accuracy (AUC >0.95), enabling broader screening in rare tumor types. Despite these advances, significant research gaps persist, particularly in pediatric ROS1-positive cancers, where data are limited to case series and rare fusions in infantile hemispheric gliomas, with no dedicated phase 3 trials. Long-term overall (OS) data from phase 3 studies remain immature, as most ROS1 trials are phase 1/2, and efforts like TRUST-IV are only recently underway, highlighting the need for extended follow-up to establish benchmarks.

Community and Advocacy

The ROS1ders Initiative

The ROS1ders Initiative was founded in 2015 by a small group of ROS1-positive patients and caregivers, evolving into a global network of patients, families, and advocates dedicated to improving outcomes for ROS1-positive cancers. As a 501(c)(3) non-profit organization established in 2019, it focuses on raising awareness about this rare subtype, which affects approximately 1-2% of non-small cell cases, and accelerating research through patient-driven efforts. The initiative's core activities include maintaining resources on its website, such as listings of clinical trials and treatment information tailored to ROS1-positive patients. It also facilitates virtual support groups via a Facebook community with over 1,000 members from more than 30 countries and regular meetups, providing peer-to-peer emotional support, education on managing side effects, and updates on emerging research. Furthermore, The ROS1ders collaborates with pharmaceutical companies, such as , to support trial recruitment and bridge gaps between patients and clinical opportunities. Through these efforts, the initiative has made significant impacts, including advocacy for broader access to key therapies like and the development of its Real-World Data Project to collect and analyze patient experiences, treatments, and outcomes for generation. Recent developments as of 2025 include the announcement of the ROS1+ Cancer Innovation Award to fund , with applications opening in February 2025, and a virtual webinar on living with ROS1+ held in November 2025. The ROS1ders prioritizes equity by promoting global access to inhibitors and addressing disparities in care availability.

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